PACING
One of the best strategies for coping with your M.E. is pacing.
This is done by rationing your activities so that you do not
become over exhausted.
Find
your baseline and halve it
Your baseline is the amount of activity that you can manage
comfortably. Work this out, and then aim to do about half of
it. As you get a little better, you can increase your activity
slowly, but still keeping within your baseline.
Listen
to your body
Your body is a great self-pacer. If you overdo it, you may be
fine today, but you're probably going to suffer for it in the
next couple of days! If your body says stop, then listen to
it!
Take
plenty of rest breaks
Few things are so important that they have to be done in one
go. Try not to do any activity for more than about 20 minutes
at a time. Even a short break can help, before you go back to
the task. For long activities that you just have to do, try
to think of a way of breaking them down into shorter steps.
Ask
for help
A lot of us don't like asking for help. We think we're imposing
on people, or admitting failure. You'll usually find that if
you only ask, most people are only too willing to help you.
It makes them feel needed, and people generally like to feel
needed.
Use
gadgets
If there are jobs you find difficult, is there any aid which
will help you do it more easily? For example, using a long handled
brush or mop is much easier than getting down on your hands
and knees. Use furniture or fittings to pull yourself up from
a bed or chair. You'll soon find ways to make things easier,
and somewhere out there is usually someone who can supply what
you need. Look at the disability catalogues: they have gadgets
such as kettle tippers, bath rails, and all sorts of other things
to make your life easier.
Plan
ahead
If you have a big event coming up, visualise what you will be
likely to do, and see if you can think of ways to make the day
easier for you. And try to get plenty of rest beforehand, and
factor in time for resting afterwards.
